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Backstories 2020

Sandi Parsons

"Despite society’s expectations, which disabled me far more than my body did, I have outlived my expiry date many times over." Sandi shares her story of her battle with Cystic Fibrosis.

Funded by the Department of Local Government, Sport and Cultural Industries, Healthway, Act-Belong-Commit, the City of Mandurah and the City of Bayswater, Backstories was a one day multi-sited storytelling festival located in the suburbs of Western Australia held on March 14 2020.

“Despite society’s expectations, which disabled me far more than my body did, I have outlived my expiry date many times over.”

Sandi Parsons considers her guardianship of gifted lungs one of her many victories in her ongoing battle with Cystic Fibrosis. Sandi was 38 when she underwent a double lung transplant. At Backstories, Sandi shared her story about her battle with Cystic Fibrosis, and the fulfilling life she has managed to create for herself despite its ongoing challenges.

Photo of Ran Bradfield and Sandi Parsons at Backstories

Copyright © 2020 Sandi Parsons.

This story and corresponding images have been licensed to the Centre for Stories by Sandi Parsons. For reproduction and distribution of this story/image please contact the Centre for Stories.

This story was published on 30 April 2020.

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We wish to acknowledge the traditional custodians of the land the Centre for Stories is located on, the Whadjuk people. We respect their culture and the continuing contribution they make to the life of this city and this region.